Southern Ramblings

Research 1 in 25,000 live births Can affect the spine, lower limbs, genitourinary tract, kidneys or intestines. Some babies are born with missing kidneys or abnormally shaped kidneys Pieces of the spine are missing or not properly formed Spinal cord is incomplete, this affects movement, feeling, toileting. Legs can be "stuck" in a variety of positions. "Buddha, or frog-like," sticking straight out, or ninety degree angles Some are born with clubfoot. Babies born with SA/CRS are typically small, with narrow hips and loads of issues that can't be diagnosed until after birth.  The baby I met after I recovered from my Cesarean was yet to be diagnosed. She was chubby, with light brown hair. Her left leg was stuck in a "Buddha" position (bent at the knee) but she was healthy. She ate properly, peed, pooped and cried like any baby you ever met. NICU has strict rules on visiting hours, so we spent a lot of time hanging out at the Children's hospital betwee...

"Ok, I need to go get the doctor now. No worries I'll be right back."  This ultrasound technician was a liar. She worked in a high-risk fetal maternal medicine office. Her lies should've been more convincing.  One umbilical artery. Feet that aren't quite right. Left leg doesn't move. More tests. More ultrasounds. More doctors. Amniocentesis. More questions. No answers. And finally, her brain is "smooth"... "Ma'am, this pregnancy isn't viable. This fetus will not survive outside the womb. You need to consider termination, before it's too far along to do so." "NEW DOCTOR!" I demanded. And a different doctor told me the same thing. And after him, another doctor with the same opinion.  Another baby girl. I have four sisters and a daughter. This family only makes girl babies. And THIS girl baby is mine. This baby girl belongs to my sweet daughter. HER baby.  We prayed together. We researched, we cr...